Thursday, 4 February 2016

Foggy Frog and the Pain Gang

I've been interested in this project since I first heard of it. A picture book to help explain living with illness is a fantastic way to help people, including the young, to understand the realities of a complex illness in a simpler way. It is a great cause to support and I encourage everyone to get behind this and help the project be fulfilled.

Here is Megan's story. Megan is the driving force and inspiration of this project. I am awed by the vision she has of filling a need for a book like this and conquering the daily obstacles she must face as she battles with foggy frog and the pain gang to get the story told:

Recently diagnosed with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Fibromyalgia and Pelvic Congestion Syndrome, Megan is currently searching for a lifestyle that reduces the symptoms from these conditions and allows her to live a fulfilling life. Finalist in the Channel 9 Young Acheiver Awards Flinders Port Holdings Environment Awards in 2012 and 2013, and again for the 2014 award (winner announced at the end of March), she has a strong focus on the provision of high quality, individualised education on an ongoing basis to enhance sustainable living and awareness of invisible illnesses.  Through the development and delivery of community, school, and corporate workshops, Megan has encouraged and supported her local and global community to live more sustainably. Her newest projects, the “Foggy Frog and the Pain Gang” campaign and Foggy Frog Creations focus on raising awareness of invisible illnesses and sustainable living through a combination of information delivery and living by example.

Foggy Frog and the Pain Gang. Why and how you can get involved:
Approximately 1 in every 5 people around the world suffers from some form of chronic pain but most people haven’t even heard of the illnesses causing it.  Foggy Frog and the Pain Gang was developed as Megan’s way of putting some distance between herself and her symptoms and for describing these symptoms to those that asked about them. When she couldn’t find any simple picture books about her illnesses, Megan decided it was time to share Foggy Frog and the Pain Gang’s story.  Since their creation, Foggy Frog and the Pain Gang have been used by multiple people suffering from chronic illnesses like Fibromyalgia and Myalgic Encephalomyelitis (Chronic Fatigue Syndrome) to describe their symptoms to their loved ones.
Megan is now reaching out to the community to help bring her unique picture book, Foggy Frog and the Pain Gang, to the world. On Sunday, 2 March 2014 at 2 pm CST (Adelaide), a Kickstarter campaign will be launched to raise the $7,500 necessary to publish and distribute Foggy Frog and the Pain Gang worldwide to those who need help explaining or understanding the symptoms faced by those with invisible illnesses. Once launched the campaign has only 27 days to raise the $7,500 or they will receive none of the money, so please help by visiting after the launch to pledge your support and share the project through your social networks.
All people deserve to have their story heard, and those suffering invisible illnesses deserve to have theirs heard too. This picture book tells the first part of that story without leaving people out because their illness isn’t recognised or they don’t have a name for it.
Let’s get this book out there! Many communities would find this book very beneficial, and it would assist many people with gaining a better understanding of invisible illnesses. The more coverage and support we get here, the more we’ll be able to get this book out in the world in a way that works for many and not just a few.
Kickstarter campaigns operate under an “all-or-nothing” funding model so if the Foggy Frog and the Pain Gang Campaign doesn’t reach it’s goal at the end of 27 days then the book may never be published. To follow the campaign, be sure to find them on Twitter (@ChronicMeg) and Facebook and spread the word to your social media networks.  Consider donating as little as $1 to help bring Foggy Frog and the Pain Gang to the world.  If you decide to donate more, you might be among the first in the world to share in the story and may even receive a unique handmade ukulele.

Key Links

Kickstarter (campaign page)
My Chronic Life Journey (website)