Wednesday, 3 February 2016

Coping with M.E: preparation and organisation



Having a chronic illness means having to account for every ounce of energy you spend. It's important to prioritise what you are going to spend your valuable 'spoons' on. Its also important that you don't worry or feel guilty about how you spend your energy. Make your choice and be happy with it. Negative emotion drains energy whilst positive emotion can boost it.
I would like to go to church and take my little boys to school each week. These are major events and high up on my priority lists.  If I am to have any chance at being able to accomplish the necessary outings each week I have learnt that good preparation and effective organisation are essential in ensuring I don't overdo it and have little to do but rest after. 
Here are some tips that I find useful, either for yourself or for your carer (in my case, my dutiful husband!) :
•Make meals in advance so they only need heating up.

•Choose your clothes and get them ready the day before.

•Get your bags packed the day before too. Pack healthy snacks so you can eat little and often to avoid hunger lows.

•Have set places for your bag, key, phone etc so you don't have to search the house for them.

•LISTS. Make a list of everything you need to prepare And keep it nearby so you can add to it when you remember new things.

•If you're like me, you'll need to set an alarm on your phone to remember to look at the list!

•Don't just prepare the items needed for the outing, prepare for after too. I have three young children so I make sure that their bedtime clothes, toothbrushes, drinks etc are all to hand and ready so bedtime isn't a manic rush.

•Last, but not least, DON'T PANIC. Calmly prepare and organise, any stress, rush or panic will be counter effective.